Friday, April 16, 2010
We met with the neurologist and with his encouraging soft gentle voice he shared... the images of white matter showing up in the right side of the brain (my brain has polka dot brilliance) ...lypoma(sp) size and changes...a complete break in some of the arteries that make important connections to brain functions ... and a mengianoma (sp) at the base of the brain...all are further evidence of systemic lupus progressing in my body's systems. Now what do we do next...1) maintain observations on any facial changes and continued visual interruptions 2) further moderation observations inside the brain with other tests still to be attempted 3) some new medications to help me deal with the extreme fatigue 4) continue doing what I can to keep my life normal...whatever normal is for lupus patients. The good news is I am not ready for radiation procedures as long as the growth continues a slow progress, maintain a healthy blood pressure and continue with healthy organic whole food approach to our diets and I will add LAUGH every day. Love the ones most important in your life, do what you love the most! and remember to reach out when you need a helping hand and remember to give a helping hand when you can. Art Saves Lives!!!
Ken and I went over to be with Cole and Morgan while Erin went up to be with her mother who had a total knee replacement. Ken made his famous barbecue chicken wings, I made wild rice with mushrooms and a baby romaine salad, guacamole dip for veggies and sugar free vanilla pudding topped with blueberries, strawberries and blackberries. A messy meal to totally relish and enjoy the coming of the good old summertime. Cole was my assistant when Ken had to go into a couple classrooms and poor Morgan had developed quite a fever and now we know an earache ...all she wanted was to be held and soothed. Around five Erin arrived home and she made medication adjustments and within an hour she seemed to come back to being a more mischievous little angel. I did the dishes and we headed home with a little concern that the whole family would be able to get a good night sleep. Erin and Morgan were up a five am and the doctor confirmed little Morgan's earache so with an antibiotic and medications I am praying she will be squealing once again with laughter. I fell asleep rather quickly when we arrived home and realize once more why God gives babies to young parents...energy is a necessity!
I am going to try to get some work done tonight and relax at home with a movie from Netflix...Men Who Stare at Goats...I am curious about this Clooney endeavor. Have a great weekend. Imagine and Live in Peace, Mary Helen Fernandez Stewart